Blog Archives

Moving At Her Own Pace

We’ve been working so hard at therapy lately! Drinking from our straw cup and learning to go from sitting to standing are some of our focuses. We are still working really hard on crawling, getting to a sitting position, and

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie

Bring on 2015!

2014 was an amazing year for our family! We got to meet our Gracie bug. She had a successful heart surgery. We got to watch Gage turn into a sweetheart of a big brother. We had weekly therapy and were

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie

We Can Hear!

We have had a busy couple of weeks, but one fantastic thing that happened is we learned Gracie can hear just fine! We’ve been concerned about her hearing because she is not talking or babbling and she also won’t respond

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie

People-First Language

Something I never thought about before Gracie was people-first language. I can’t put it in better terms than The Arc, an organization that advocates for people with disabilities, and also where Gracie gets her in-home therapy, so here is what

Posted in Down Syndrome, Gracie

October = Busy

I didn’t do too well on blogging during Down syndrome awareness month, did I? Oh well. Life was a little crazy this month. We have been to a few football games, introduced Gracie and the Bell Center to my coworkers,

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie

Dear Richard Dawkins

I recently read your Twitter rant about your support of aborting babies with Down syndrome. It started with someone asking your opinion on the matter and you answered her, but then you continued. As I read your statements, I’ll go so

Posted in Down Syndrome, Gracie

6-Month Checkup

We had Gracie’s 6-month check up with our amazing pediatrician yesterday. Little lady is up to 12.3 pounds (that means she has gained 1 pound in a month), and has grown in length. She is still not on the chart

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie

Working On Our Muscles

Our life is…normal! Gracie has recovered from surgery so much faster than I thought was possible! We haven’t had a doctor appointment in 3 weeks! Amazing! We go to the pediatrician for her 6 month check up this week, so

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie

3 Weeks Post-Op

We took Gracie to the cardiologist today and ALL of the fluid around her heart is gone! We get to wean her off the Lasix this week and then she will be done with any sort of medication! The cardiologist

Posted in Down Syndrome, Gracie

From Heart Surgery to Home

We are home. Amazing. Like I said before, I have anticipated this surgery and had anxiety and fear over possible outcomes, and now it’s over. Gracie’s heart is fixed and we are home. There were several times when we got

Posted in Down Syndrome, Every Day Stuff, Gage, Gracie