One Year

One Year.


One year since we handed you over to a stranger for them to crack your chest open and fix your heart. It makes me shudder to think about it now. Such a huge, invasive surgery on such a little body. Your heart was the size of a walnut. So many months of anticipating that moment. Sleep lost, prayers cried to let the surgery be successful.

And it was.

photo 4(6)

Praise God that He brought you through the surgery and an amazing recovery. Praise Him that our anticipation was over and the anxiety of having to hand you over and cringe when we thought about what you were going through is over.

The relief I felt when we saw you, even though it was shocking to see how you looked, to know that it was over and went seamlessly – without any hiccups,  was unbelievable.

The sleepless nights through recovery and the pain you were in were few. It was amazing. It is still amazing.

Getting an echo to check her repair!

Getting an echo to check her repair!

I look at you and see, without a doubt, my hero. You are so strong, so resilient. You defy odds. I want to go back to that horrible high-risk OB and shake him and say, “look at this baby you spoke so negatively about! Look at her now! She’s amazing! You were so wrong about how strong she would be.”

Best moment. Cried my eyes out. Still hooked up to a lot of sensors, IVs, and oxygen, but at least we could finally hold her!

Best moment. Cried my eyes out. Still hooked up to a lot of sensors, IVs, and oxygen, but at least we could finally hold her!

Such a special thanks to Gracie’s surgeon, Dr. Dabal. God used you, Dr. Dabal, to make this day we reflect on one of celebration and thanksgiving, instead of grief and heartache. Thank you for your amazing care of Gracie and our whole family. You and the staff at Children’s went above and beyond. Thank you will never be enough.

Heart surgery was such a big deal. I am so glad it’s over, but you continue to amaze me and you work so hard to progress and grow. I’m so proud of you, Gracie bug. I’m so happy we are a year out from open heart surgery and that God brought you through it in amazing fashion – as only He can.


So excited we can’t contain our happiness!

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Posted in Down Syndrome, Gracie
6 comments on “One Year
  1. Virginia says:

    Such a beautiful story a year ago, over the last year, and in the year ahead.

    Gain Gracie Gain!

  2. Cathy Gipson says:

    What a milestone…
    What a blessing…
    What a girl…
    What a Great God!!!

  3. Brooke McCollum says:

    God made Gracie perfect! She is such a light!

  4. cbradford21 says:

    So proud of you, Les , Gage and the support and love you show to our little Gracie Bug. The future is bright!!! Love ya’ll….Grammie:))

  5. Ginger says:

    Such a powerful story!!! God is SO GREAT!! Thank you for always sharing!!

  6. Jenna says:

    I’m so glad I read this today. Our daughter turned 1 in June and we are told she will need OHS to repair her AVSD when she is 2 or 3. Thank you for being generous and brave enough to share your surgery pictures, and ESPECIALLY recovery pictures. Looking at them does not make facing this easier for us, but it does give us hope and help us visualize a positive outcome. Thanks again. (P.S. Grace is SO BEAUTIFUL!)

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