I didn’t do too well on blogging during Down syndrome awareness month, did I?
Oh well. Life was a little crazy this month.
We have been to a few football games, introduced Gracie and the Bell Center to my coworkers, and celebrated Gage’s 4th birthday! We’ve also had eye exams, ENT appointments, tons of therapy, and daddy was out of town a lot. Let’s get to it!
We got season tickets this year to Auburn football, and it has been so fun for Les and me to spend time with Gage! My parents keep Gracie on game days, so it’s nice to have one-on-one time with big brother. He LOVES Auburn!
Les and Gage went to a game by themselves one weekend and got to fly in a plane! Gage had a blast!
I am already looking forward to the years ahead when we can take Gracie!
I have shared before how amazing my work and my boss have been regarding Gracie. This month was a prime example of that. Each year, my company allows employees to have one day to do service work with your district (my district includes my coworkers from around the state), wherever they choose. My team decided they wanted to do their day of service at The Bell Center, where Gracie receives therapy twice a week!
We painted a kitchen, scrubbed the playground down and did a lot of pressure washing. Gracie had therapy that day, so she was able to meet my awesome coworkers. It meant so much to me and my family to do our day of service here.
Gracie had an eye exam and more follow-up with her ENT and audiologist. The eye exam went great! He said to come back in a couple of years! That timeline is such a relief. It’s so nice to check things off our list that we do NOT need to be concerned with!
ENT is a different story. We are getting some conflicting information. Gracie’s ear canals are super small, which is common in children with Down syndrome. When we go to the audiologist to get her hearing checked, the results aren’t great, but then our ENT feels like everything is OK and she is fine. We are currently getting some advice if we should get second opinions. We just want to make sure that Gracie is hearing as well as she possibly can. Gracie rarely talks, which may be fine and she may be slower developmentally in that area, but I don’t want it to be for lack of hearing. She also doesn’t respond well to things, so that is why I am pushing to be more proactive and not accepting information unless I know it’s 100% accurate.
Gage turned 4 last week. I can’t believe it. He is such a joy to parent. He is kind, compassionate, funny, smart, and adores his baby sister. He asked me last week, “Mama, let Gracie lay on my chest like she does you and daddy.” Here is the result:
And finally, since Gage is so obsessed with Auburn and is even going as an Auburn football player for Halloween, I leave you with his amazing rendition of the Auburn fight song. My favorite parts are “give ’em peck” and “power of pixieland.”