We are two weeks out from Gracie’s open-heart surgery! It is such a relief to have that behind us. I don’t think I realized what a weight it was on me until it was gone!
When we left the hospital, they were concerned about the fluid around her heart. If it did not go away with the help of lasix, there was the possibility we would have to be admitted to the hospital again and have it taken care of there. We came home on Tuesday and went to the cardiologist the following Friday. The fluid had decreased! We returned to the cardiologist the next Monday, and the fluid was almost gone! We mentioned this in the last post, so thank you to all of you that prayed specifically for this!
I’ve taken these last two weeks off work so I can be home with Gracie and make sure she is 100% by the time I go back next week.
It’s amazing to see what a great big brother Gage is to Gracie. He is the biggest, best, most perfect, loving, selfless, caring, amazingly funny, and smart 3-year-old brother. Gracie bug is a lucky lady to have this one by her side.
One thing I learned recently is people with Down syndrome can have “brushfield spots” in their eyes. I think it looks like fireworks in Gracie’s eyes…or a little extra sparkle God gave her…a finishing touch in His perfect creation. I think her eyes are so beautiful.
Thank you so much for praying for us these last few weeks. We are going to go see her surgeon tomorrow to have him look at her incision. It’s been looking a little funny the last few days, so please pray it won’t be anything serious. The great thing about our hospital is I was able to call the ICU and speak with a nurse practitioner and text them a picture of what I was worried about. They showed it to our surgeon and we are just going to stop by and let him take a look. We were supposed to go today, but he had a case run long.
Our life is definitely getting very NORMAL.
Well, except for the fact that a 6’2″ worm got a hold of Gage. Don’t worry, though. He’s OK. 🙂