In one week we will be 24 hours out of open heart surgery. Hopefully we will be able to take some deep breaths and start the recovery process. We have known Gracie was going to need to have surgery since I was pregnant! This has been a really long time to wait, think, and be anxious about it. I have done a pretty good job of compartmentalizing my thoughts about this surgery, but after our meeting with the surgeon last week, it’s been impossible not to think about it frequently. Something about having all of the things that could go wrong laid out for you will jerk you back into reality!
I shared on Instagram the other day that it is a decision every moment of my day to trust God instead of panicking. I am grateful for my faith, family, and friends during this time. These things are a necessity.
Will you pray for our Gracie? For her body to be strong and resilient as her heart is stopped and put on bypass, and as the surgeon patches her heart to make it better than ever? That she will come off the ventilator easily, and eats just as well after surgery as she did before? These are the things we need for our precious Gracie.
We’ve heard we will be in the hospital anywhere from 5-10 days, depending on how it goes. That seems like a very long time when I think about sleeping, eating, staring at my baby, and praying for her in a small hospital room, but the fact that she is having open heart surgery and may be out of the hospital in 5-10 days, is actually pretty amazing.
Gracie has been doing great in therapy. We will go once more next week and then be done until August. She isn’t allowed to be on her tummy or strain herself after surgery, so we will take things easy and be creative on how we work on things.
Thank you to everyone that has been so encouraging to us. Your prayers and offers to help are amazing. We can’t thank you enough. Please continue to pray with us.
So here are two pictures on a lighter note…