Happy World Down Syndrome Day


Last year on this date, I wasn’t even aware there was a day to celebrate down syndrome, and now we are in the middle of navigating our new normal that includes it! This is definitely a day to be celebrated. We are only at the beginning of knowing our sweet Gracie and seeing what God has in store for her life! The joy she has brought into our lives is overwhelming.

But this day also makes me sad. Something we learned early on was that for every Gracie you see, you don’t see 9 more babies like her. 9 out of 10 pregnancies are aborted when down syndrome is diagnosed early in the pregnancy.

Heart breaking to say the least.

I found that statistic during the early days of searching the internet for any bit of information about down syndrome I could find after finding out Gracie would have down syndrome. Even in those days where I felt so much fear and anxiety, I still could not grasp that number. 92% of babies with down syndrome are aborted.

I remember getting the results of the blood test and being asked, “do you want to continue with the pregnancy?” I had tears streaming down my face and could barely stand up at that moment, but I responded with, “of course.”

If you know us, it’s no surprise that our family is 100% pro-life. Life begins at conception and is created perfectly by God. It is not my choice to decide if life is valuable enough to be spared. Very black and white for us.

One of the main reasons we wanted to blog about our new normal, was because of that horrible statistic. I want anyone who finds this blog if they search for “down syndrome” to know that it is going to be OK. In fact, it’s going to be great.

I feared so much about what was going to be our new normal while I was pregnant. But that’s all gone now. I am head over heels in love with this baby girl and I love what she is bringing to our family. I look back over the last few months and want to smack myself in the head! How could I ever think God was capable of anything but perfection and good things? But I feared and was scared. And I have learned from the wonderful community of people I have met, with sweet kids like Gracie, that it’s normal to be scared, but those feelings won’t last forever.

And they were right.

So if you are reading this blog and are in a similar situation that I was in, know that I am praying for you. I’m praying that God gives you the peace to know that His plan is perfect. I’m praying that you have the strength to choose this beautiful life.

I am changing right now. My perspective, my priorities, my passions – and I am so grateful to God for it.

I’d love to pray for you or talk to you if you find yourself on your way to navigating your new normal. The support I have received and the people I have met in this short time have been amazing. I want to be that for other people too. You can contact me any time.

Happy Down Syndrome Day. I love being part of this celebration.

A Good Read for Choosing Life:

* When I was pregnant with Gracie, our pastor preached on abortion and had a section about children with disabilities. I encourage you to take the time to listen to this sermon if you are contemplating abortion or know someone who is. It was an amazing Sunday morning that gave me such peace to help me remember that our Gracie was perfectly created.
Posted in Down Syndrome, Every Day Stuff, Gracie
8 comments on “Happy World Down Syndrome Day
  1. Maggie says:

    I’m so glad that I found your blog and that I get to see your family’s journey with Gracie right along with my family’s with Tessa. We are so blessed!!

  2. Ashleigh knight says:

    What a blessing it is for your children to have you and Les as parents. Thank you for continuing to share your faith and your story. I am praying for y’all! (Specifically for Gracie’s weight, heart and future surgery.)

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