We’ve had a couple of doctor visits and a few new things in the last week. One thing is for sure, Gracie has a great team of doctors. Even though we’re in a doctor’s office every week, and sometimes more than once week, we’re very thankful for the medical resources in Birmingham.
We had ENT and Audiology appointments last week. Gracie failed the hearing test at the hospital 3 times, so we had to go get another one to see what was going on. The audiologist prefaced the test by telling us how many people with down syndrome have hearing loss, but Gracie ended up passing the test in both ears. Praise the Lord! She’s got some tiny ear canals, so at our ENT appointment that was next, he mentioned she would probably need tubes because she would be more prone to ear infections. He also told us when she is 3 or 4, she might have to have her tonsils and adenoids out because children with down syndrome can sometimes struggle with sleep apnea. It was encouraging to know that this is a “might” for Gracie and also several years down the road. We will go back in 6 months and talk about tubes.
We saw our pediatrician on Tuesday and unfortunately, Gracie has not gained ANY weight in two weeks. That’s such a bummer for me. And her! I thought she was doing fantastic with nursing – and she actually is, but with her heart, she is probably burning more calories nursing than she is consuming, so it’s not a win-win. We are trying some other things so we can measure how much she is getting, and it is not going well for me (Jamie) yet.
This is a big prayer request — please pray that Gracie packs on the ounces! This little peanut has to gain weight to have the surgery in June or July, which is the optimal time. That’s a lot of pressure, but I am grateful that God is in control over all of this. I can just do what I can do and leave the rest to Him.
Big Brother Gage
Gage is such a sweetie to his Gracie. I was holding her the other day and he came over and rubbed her head and said, “Hello, sweet darling.” Of course I immediately cried. The sensitivity and love of our precious Gage overwhelms me sometimes. It’s obvious that he is the perfect big brother to Gracie. I can’t wait to see what God does in his life to have an impact.