Thank you all so much for your prayers for all of our upcoming appointments. It is such an encouragement to us and we appreciate you lifting our Gracie up with us. Your prayers and support mean so much.
We had our cardiology appointment at UAB yesterday. They did an EKG on Gracie…
And finally another echo (We had one when I was pregnant, and one as soon as Gracie was born).
The cardiologist saw two heart defects. We didn’t know about the second one until yesterday, but he seemed to think it wasn’t a big deal as far as repair goes and they will just clamp it when they fix her AV canal defect. From what the doctors are seeing, everything is in the highly manageable camp and everything else with her heart and anatomy look great. And the fact that she is eating and gaining weight is also great.
So What’s Next?
We will monitor Gracie over the next couple of months and when she is about 3 months old (around May), we will discuss surgery dates. Right now, we’re on a track to open heart surgery around 4-5 months old (June or July).
I’ll be honest, I was hoping to go in there and have the doctor say, “Wow! It’s a miracle! I don’t see the defect anymore!” 🙂 God may still do wonders with her heart over the next few months — and we believe without a doubt in His power to do so, but if she needs this surgery, we pray He gives the surgeons the wisdom and skill to operate on her precious heart — which will be the size of her fist. No matter what, God is sovereign. We don’t always understand these things, and open heart surgery is really painful to think about right now, but He is in control and we trust His plans for Gracie’s life are good and He will use her life to bring glory to Him.
So pray with us. Pray that Gracie continues to gain weight. Pray that she doesn’t develop any symptoms prior to surgery. Pray our faith would be strengthened as we learn how to trust God in new ways.
We are so grateful to God that He has entrusted us with Gracie and also for your love and support.
On A Lighter Note . . .
Having a newborn with down syndrome is about as normal as you can imagine! Gracie eats, sleeps, cries, loves ceiling fans, and chooses to poop as soon as I put a new diaper on her. Sound familiar to all you parents? Sound normal? It is. 🙂